Contaminated Blood & Blood Products: Public Inquiry Press & Media

The Contaminated Blood & Blood Products Public Inquiry   The Inquiry will examine why men, women and children in the UK were given infected blood and/or infected blood products; the impact on their families; how the authorities (including government) responded; the nature of any support provided following infection; questions of consent; and whether there was a cover-up. For more details, […]

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Haemosexual Updates: Public Inquiry into the Tainted Blood Scandal

Haemosexual Updates Public Inquiry into the Tainted Blood Scandal   Mark Ward, Founder of Haemosexual & Haemosexual Australia As the public inquiry into the contaminated blood scandal progresses, a personal commentary, updates and Inquiry information from Mark Ward will be published, along with his and other victims reactions. Accompanying videos will also be available on the Haemosexual YouTube Channel.   […]

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Haemophilia News

HAEMOPHILIA NEWS The purpose of this page is to provide news articles related to Haemophilia. The information contained on this page includes various items, for example: Developments of new clotting products, vaccination updates and haemophilia industry business along with other areas of this specialist field of medicine.   Click on each link to read the News article: August Spark Therapeutics […]

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Contaminated Blood Scandal Updates & Media

Contaminated Blood Scandal Updates & Media   Panorama – Contaminated Blood: The Search for the Truth Published on 11 May 2017 It has been called the worst treatment disaster in the history of the NHS. More than 2,000 people died and thousands more were infected with HIV and Hepatitis C after being treated with contaminated blood products. All the victims […]

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DWP: PIP Review of Haemarthropathy Cases

  Review of haemarthropathy cases During a meeting at the Department for Work & Pensions yesterday, 18th June 2018, we discussed the information note below which provides details on the haemarthropathy administrative exercise due to start on Monday 25th June.   Statement from Sarah Newton MP Following a meeting between my predecessor, Penny Mordaunt MP and the co-chair of the […]

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SPORADIC CJD CASES IN THE UK BLEEDING DISORDERS COMMUNITY REPORTED

  Sporadic CJD cases in the UK bleeding disorders community reported   The sporadic form of the disease, also known as sporadic Creutzfeldt-Jakob disease (CJD), or classical CJD, accounts for approximately 80% of all recognised prion disease. Sporadic CJD occurs in every country with a remarkably similar incidence: approximately one person in every million develops sporadic CJD per year.   Sporadic prion disease The sporadic form of the disease, […]

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World Federation of Haemophilia Congress 2020 – Kuala Lumpur

Kuala Lumpur to host World Federation of Hemophilia Congress in 2020 The WFH World Congress is said to be the most significant international forum that brings together the entire global bleeding disorders community. The congress will see a line-up of speakers comprising leading experts in the field of inherited bleeding disorders and healthcare officials. The Congress will showcase the latest […]

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A LONE VOICE FOR LGBTQ HAEMOPHILIACS

On the eve of meeting with Sir Brian Langstaff, chair of the public inquiry into the contaminated blood scandal, I am proud to share my interview with Gretchen Hammond. A LONE VOICE FOR LGBTQ HEMOPHILIACS  IGNORED BY ADVOCACY ORGANIZATIONS, LGBTQ HEMOPHILIACS HAVE AT LEAST ONE RESOURCE Mark Ward, Founder of Haemosexual & Haemosexual Australia Even as the LGBTQ community grows […]

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Ryan White Remembered – 2018

Ryan White 1971 – 1990 28 years ago today, my hero Ryan White died at the age of 18. During the 1980s, Ryan became a national spokesperson and symbol of hope for the #haemophilia #hemophilia and HIV/AIDS community after being expelled from middle school banned due to community fears that the virus would spread to other children. Today, his mother […]

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