“Boy Erased” The Official Trailer

    Boy Erased: first trailer for Oscar-tipped gay conversion drama revealed Oscar nominee Lucas Hedges stars as a young man sent away to a program aimed at ‘curing’ him of his homosexuality in the fact-based story Lucas Hedges in Boy Erased. Photograph: YouTube The trailer for the Oscar-tipped drama Boy Erased has given a first look at the fact-based […]

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Contaminated Blood Scandal Updates & Media

Contaminated Blood Scandal Updates & Media   Panorama – Contaminated Blood: The Search for the Truth Published on 11 May 2017 It has been called the worst treatment disaster in the history of the NHS. More than 2,000 people died and thousands more were infected with HIV and Hepatitis C after being treated with contaminated blood products. All the victims […]

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DWP: PIP Review of Haemarthropathy Cases

  Review of haemarthropathy cases During a meeting at the Department for Work & Pensions yesterday, 18th June 2018, we discussed the information note below which provides details on the haemarthropathy administrative exercise due to start on Monday 25th June.   Statement from Sarah Newton MP Following a meeting between my predecessor, Penny Mordaunt MP and the co-chair of the […]

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SPORADIC CJD CASES IN THE UK BLEEDING DISORDERS COMMUNITY REPORTED

  Sporadic CJD cases in the UK bleeding disorders community reported   The sporadic form of the disease, also known as sporadic Creutzfeldt-Jakob disease (CJD), or classical CJD, accounts for approximately 80% of all recognised prion disease. Sporadic CJD occurs in every country with a remarkably similar incidence: approximately one person in every million develops sporadic CJD per year.   Sporadic prion disease The sporadic form of the disease, […]

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World Federation of Haemophilia Congress 2020 – Kuala Lumpur

Kuala Lumpur to host World Federation of Hemophilia Congress in 2020 The WFH World Congress is said to be the most significant international forum that brings together the entire global bleeding disorders community. The congress will see a line-up of speakers comprising leading experts in the field of inherited bleeding disorders and healthcare officials. The Congress will showcase the latest […]

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HIV Garden at RHS Chelsea Flower Show 2018

  The CHERUB HIV garden: A Life Without Walls Did you know… Walls across the path in the garden symbolise the stigma and fears of young people living with HIV   Impression of hands, set as flowers into the steel-like bench, are taken from young people living with HIV, many of whom are reluctant to disclose their HIV diagnosis.    Aquilegia, Iris ‘Blue […]

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A LONE VOICE FOR LGBTQ HAEMOPHILIACS

On the eve of meeting with Sir Brian Langstaff, chair of the public inquiry into the contaminated blood scandal, I am proud to share my interview with Gretchen Hammond. A LONE VOICE FOR LGBTQ HEMOPHILIACS  IGNORED BY ADVOCACY ORGANIZATIONS, LGBTQ HEMOPHILIACS HAVE AT LEAST ONE RESOURCE Mark Ward, Founder of Haemosexual & Haemosexual Australia Even as the LGBTQ community grows […]

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Ryan White Remembered – 2018

Ryan White 1971 – 1990 28 years ago today, my hero Ryan White died at the age of 18. During the 1980s, Ryan became a national spokesperson and symbol of hope for the #haemophilia #hemophilia and HIV/AIDS community after being expelled from middle school banned due to community fears that the virus would spread to other children. Today, his mother […]

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