Haemophilia News

HAEMOPHILIA NEWS

The purpose of this page is to provide news articles related to Haemophilia.

The information contained on this page includes various items, for example:

Developments of new clotting products, vaccination updates and haemophilia industry business along with other areas of this specialist field of medicine.

 

Click on each link to read the News article:

July

Image result for farnham herald logo

Service honours haemophiliacs

The Treloars Former Pupils’ Association is inviting staff, pupils and friends of Treloar School and College, past and present, to join them this month for a special service at the Church of the Holy Rood in Holybourne, near Alton.

The service at the newly-refurbished church on July 28 will dedicate a new pew in memory of the haemophiliac boys who lost their lives after being given contaminated blood products

Continue Reading:

http://www.farnhamherald.com/article.cfm?id=127782&headline=Service%20honours%20haemophiliacs&sectionIs=news&searchyear=2018

 

NHS England says yes to Roche’s Hemlibra

Hemlibra

While NICE is England’s best known market access gatekeeper, NHS England is in direct control of specialised commissioning, and negotiates directly on pricing and reimbursement on a select number of specialised and high cost medicines.

Continue Reading:

http://www.pmlive.com/pharma_news/nhs_england_says_yes_to_roches_hemlibra_1243594

 

 

June

 

 

DWP REVIEWING PIP APPLICATIONS FROM PEOPLE WITH BLEEDING DISORDERS

In October 2017, the Department for Work and Pensions set up a working group with individuals affected by contaminated blood and blood products to hear about their experiences of the application and assessment procedures for disability benefits.

The working group highlighted issues with how claimants with haemarthropathy (a severe type of arthritis caused by bleeding into joints) were being assessed for Personal Independence Payment (PIP).

The need to review such PIP cases was identified and these reviews will begin today. No one will have their awards reduced as a result of this review.

The review will happen automatically and there is no need for people to do anything at this point, however, anyone with haemarthropathy who believes their case should be reviewed but does not receive a letter by 23rd July 2018 should phone the dedicated phone line 0800 121 4296 as soon as possible after that date.

For more information, please read the statement from the Department for Work and Pensions here.

http://haemophilia.org.uk/2018/06/25/review-of-haemarthropathy-cases-begins/

 

February

Explaining Joint Bleeding in Hemophilia

https://hemophilianewstoday.com/2018/02/01/explaining-joint-bleeding-in-hemophilia-2/?utm_source=Hemophilia+News&utm_campaign=48d6e04076-RSS_EMAIL_CAMPAIGN_THURSDAY&utm_medium=email&utm_term=0_ab10fdd11a-48d6e04076-72053913

 

January

Man Becomes First With Severe Hemophilia to Climb Seven Summits

https://hemophilianewstoday.com/2018/01/29/man-becomes-first-with-severe-hemophilia-to-climb-seven-summits/?utm_source=Hemophilia+News&utm_campaign=48d6e04076-RSS_EMAIL_CAMPAIGN_THURSDAY&utm_medium=email&utm_term=0_ab10fdd11a-48d6e04076-72053913

 

 

The Challenges of Caring for Older Hemophilia Patients

https://hemophilianewstoday.com/2018/01/18/the-challenges-of-caring-for-older-hemophilia-patients/?utm_source=Hemophilia+News&utm_campaign=48d6e04076-RSS_EMAIL_CAMPAIGN_THURSDAY&utm_medium=email&utm_term=0_ab10fdd11a-48d6e04076-72053913

 

10 Physical and Psychosocial Benefits of Physical Activity for Hemophilia Patients

https://hemophilianewstoday.com/2018/01/11/10-physical-and-psychosocial-benefits-of-physical-activity-for-hemophilia/?utm_source=Hemophilia+News&utm_campaign=48d6e04076-RSS_EMAIL_CAMPAIGN_THURSDAY&utm_medium=email&utm_term=0_ab10fdd11a-48d6e04076-72053913#

 

 

Hemophilia News Today

 

 

 

14th December 2017

Jake Omer
http://www.bbc.co.uk/news/health-42337396

British doctors say they have achieved “mind-blowing” results in an attempt to rid people of haemophilia A.

13th December 2017

Gene Therapy Nearly Eliminates Hemophilia B Bleeding Episodes, Trial Shows

 

17th May 2017

10 Benefits of Having a Service or Therapy Dog When You Have Hemophilia

 

31st March 2017

EHC Partners

 

 

22nd March 2017

Hemophilia B Hurts Education

 

 

20th March 2017

We are incredibly excited to announce our newest member organization

 

10th March 2017

Zepatier Found Effective

 

6th March 2017

Worlds Largest Genetic Hemophilia Research Repository Opens to U.S. Researchers

 

 

24th February 2017

Patient in Emicizumab Clinical Trial Dies

 

 

22nd February 2017

Distress Triggers Brain Changes in Hemophilia Children

 

 

9th January 2017

AFSTYLA

 

 

 

 

29th December 2016

More pain in absence of treatment

 

 

US FDA approves Shire’s Adynovate for use in children and surgical settings

 

 

 

23rd December 2016

Octapharma donates Nuwiq

 

 

22nd December 2016

Roche Emicizumab for Haemophilia A meets primary endpoint in phase III study

 

 

3rd December 2016

Data reinforcing the long-term safety and efficacy of extended half-life haemophilia therapies

 

 

2nd November 2016

Adverse events in trial dent hopes for Roche hemophilia drug

 

 

 

13th October 2016

UK Regulatory Agency Approves Continued Enrollment in BioMarin Phase 1-2 Study of BMN 270 in Hemophilia A

 

 

19th October 2016

Government centre shows the way to tackle haemophilia

 

 

7th October 2016

50 Years of Progress in Treating Hemophilia Not Fully Evident in US

 

 

21st September 2016

Shandong Taibang Biological receives Chinese nod to begin clinical trials on human coagulation factor IX product