European Haemophilia Consortium – Haemophilia Stories

The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other […]

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Contaminated Blood Scandal Updates & Media

Contaminated Blood Scandal Updates & Media   Panorama – Contaminated Blood: The Search for the Truth Published on 11 May 2017 It has been called the worst treatment disaster in the history of the NHS. More than 2,000 people died and thousands more were infected with HIV and Hepatitis C after being treated with contaminated blood products. All the victims […]

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Contaminated Blood: Cover-up Revealed in Cabinet Papers

Siobhan Ryan Haemophiliac infected with HIV and hepatitis C after being given contaminated blood criticises Government Mark Ward outside the Houses of Parliament in London today and meeting Brighton MP Caroline Lucas. Stefan Rousseau/PA.. Mr Ward, who is medically retired after a career working for British Airways, said: “I am not at all surprised to hear about this. “The Department […]

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Male Genitourinary Disorders: Penile fracture

Penile fracture & Trauma Click on the name below for expert medical information & advice   Traumatic penile injury can be due to multiple factors. Penile fracture, penile amputation, penetrating penile injuries, and penile soft tissue injuries are considered urologic emergencies and typically require surgical intervention. The goals of treatment for penile trauma are universal: preservation of penile length, erectile […]

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Haemophilia Scotland Statement: UK Contaminated Blood & Blood Products Inquiry & Meeting

UK CONTAMINATED BLOOD AND BLOOD PRODUCTS INQUIRY AND MEETING Since Haemophilia Scotland was established we have tried to report back as quickly as possible about all of our activities.  Therefore, we wanted to keep you up to date with developments in the last couple of weeks since the UK Inquiry into the contaminated blood and blood products disaster was announced. We received a copy of […]

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NEWS: Contaminated blood scandal: Labour’s Burnham threatens to go to police

Contaminated blood scandal: Labour’s Burnham threatens to go to police The former health secretary says he is prepared to go to the police with the “serious allegations” if the Government does not act. Labour’s Andy Burnham has told Sky News he has “extensive” evidence from victims of the contaminated blood scandal. The former health secretary, who is now mayor of […]

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General Election 2017

This information is in no way meant as an attempt to persuade anybody’s vote on Thursday, 8th June 2017.   Haemophiliacs are born with a genetic blood disorder which prevents the blood from clotting. It can at times be life threatening and life expectancy once was a maximum of 21 years. This disabled group of people have faced many challenges […]

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Attitude Magazine: Summer 2017 Issue

  It gives me enormous pride to announce my story has been chosen to be in the Summer 2017 issue of Attitude Magazine @AttitudeMag                                   “The fact that I was now in complete turmoil about everything didn’t cross anybody’s mind. I had hormones going crazy, […]

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World Haemophilia Day 2017

  World Haemophilia Day 17th April 2017 As the sun rises and the haemophilia world awakes, the activities to mark World Haemophilia Day 2017 will bring fun, laughter and joy. The kind of day everyone can appreciate, bleeding disorder or not. It is also a day of mixed emotions because those who have access to treatment will celebrate their lives, […]

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Ryan White

www.facebook.com/groups/2219696857/     Taken from Facebook –The Ryan White Story – EVERYONE needs to know Ryan White was diagnosed with AIDS at age 13 and gained international notoriety fighting for his right to attend school. In the process, he opened the hearts and minds of millions of people. During the time between his diagnosis in 1984 and his death in 1990, Ryan spoke out often and eloquently about […]

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