DWP: PIP Review of Haemarthropathy Cases

  Review of haemarthropathy cases During a meeting at the Department for Work & Pensions yesterday, 18th June 2018, we discussed the information note below which provides details on the haemarthropathy administrative exercise due to start on Monday 25th June.   Statement from Sarah Newton MP Following a meeting between my predecessor, Penny Mordaunt MP and the co-chair of the […]

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SPORADIC CJD CASES IN THE UK BLEEDING DISORDERS COMMUNITY REPORTED

  Sporadic CJD cases in the UK bleeding disorders community reported   The sporadic form of the disease, also known as sporadic Creutzfeldt-Jakob disease (CJD), or classical CJD, accounts for approximately 80% of all recognised prion disease. Sporadic CJD occurs in every country with a remarkably similar incidence: approximately one person in every million develops sporadic CJD per year.   Sporadic prion disease The sporadic form of the disease, […]

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World Federation of Haemophilia Congress 2020 – Kuala Lumpur

Kuala Lumpur to host World Federation of Hemophilia Congress in 2020 The WFH World Congress is said to be the most significant international forum that brings together the entire global bleeding disorders community. The congress will see a line-up of speakers comprising leading experts in the field of inherited bleeding disorders and healthcare officials. The Congress will showcase the latest […]

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European Haemophilia Consortium (EHC)

  The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and […]

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A LONE VOICE FOR LGBTQ HAEMOPHILIACS

On the eve of meeting with Sir Brian Langstaff, chair of the public inquiry into the contaminated blood scandal, I am proud to share my interview with Gretchen Hammond. A LONE VOICE FOR LGBTQ HEMOPHILIACS  IGNORED BY ADVOCACY ORGANIZATIONS, LGBTQ HEMOPHILIACS HAVE AT LEAST ONE RESOURCE Mark Ward, Founder of Haemosexual & Haemosexual Australia Even as the LGBTQ community grows […]

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Contaminated Blood Scandal Updates & Media

Contaminated Blood Scandal Updates & Media   Panorama – Contaminated Blood: The Search for the Truth Published on 11 May 2017 It has been called the worst treatment disaster in the history of the NHS. More than 2,000 people died and thousands more were infected with HIV and Hepatitis C after being treated with contaminated blood products. All the victims […]

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Haemophilia News

HAEMOPHILIA NEWS The purpose of this page is to provide news articles related to Haemophilia. The information contained on this page includes various items, for example: Developments of new clotting products, vaccination updates and haemophilia industry business along with other areas of this specialist field of medicine.   Click on each link to read the News article: February Explaining Joint […]

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European Haemophilia Consortium – Haemophilia Stories

The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other […]

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Contaminated Blood: Cover-up Revealed in Cabinet Papers

Siobhan Ryan Haemophiliac infected with HIV and hepatitis C after being given contaminated blood criticises Government Mark Ward outside the Houses of Parliament in London today and meeting Brighton MP Caroline Lucas. Stefan Rousseau/PA.. Mr Ward, who is medically retired after a career working for British Airways, said: “I am not at all surprised to hear about this. “The Department […]

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